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Huntington's Disease Caregiving

Your pHD Is Unique!
Home
Index
What Is A Caregiver?
What Is An HD Caregiver?
Caregiving For A Spouse
Caregivers Bill of Rights
Cargiver~Knowledge
Helping Your Loved One
Your pHD Is Unique!
About Huntington's Disease
HD Articles of Interest
HD Guidebooks
Post Emergency Info
Early/ Early Intermediate Stages
Late Intermediate Stage
Swallowing Diagnostic
Speech & Language in HD
Swallowing Safety in HD
Early Advanced Stage
Swallowing/Diet
Swallowing Difficulties~Physician's Guide
Warning Signs of Swallowing Problems
Swallowing, Coughing, Choking & Pneumonia
Swallowing~Giving Medication
A Practical Guide: Nutrition and HD & Resources
Diet & Nutrition in HD
Nutrition and Huntington's Disease
Nutrition Information for the Care Giver
Texture & Consistency/Thining & Thickening Foods
Drinks/Shakes Recipes
Adaptive Equipment-Mealtime Help
Food Thickners
What Is A Feeding Tube?
When To Consider A Feeding Tube
Feeding Tube Decision in HD
Feeding Tube Resources
Advanced Stage
Late Stage Care
Commom Problems Encountered~Hospice Care
Temporary List of Resources
Personality Issues
Symptoms
Legal Issues
Disability Issues
At Home Care
Outside Care
Caregiver Tips
Caregiver Support
HD Facts
Helpful Forms-Download
Personal Articles/Stories
Miller Messages
HD Links
Fix It-R-Us?
How-To Tips
Have An HD Question?
Beautiful Memories
Caregiver's Chat Room
HD Caregiver Newsletter
Daily Humor & Health News
Dreams & Signs (Fun Stuff)
Share A Link
Send An HD Greeting Card
Location Map
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You will see the term "pHD' used throughout this website and many of
the articles.  It is a term coined on the on-line support group, Hunt-Dis,
and stands for "person with Huntington's Disease".
Words of Caution
by Jean Miller
 
It is important, when reading the "clinical" descriptions of the "stages" of Huntington's Disease that you keep in mind that just as all human beings are unique and different from one another, people with Huntington's Disease  do not experience all the various symptoms or "stages" of the disease as described on these pages! 
 
Some may never have chorea where others chorea may be very severe.  Some have very little cognitive changes, others demonstrate difficulties early in the course of the disease.  Some may exhibit more personality changes, others very slight.  Some become very aggitated and are difficult to help, others remain very happy and helpful.  Some "stages" last a longer period of time, others may progress more rapidly.
 
Remember, your loved one with Huntington's Disease is unique!  Do not apply everything you read to them.  You know them better then anyone else in this world and know what is best in their care.  Don't let anyone try to convince you otherwise!